【《#破冰者#》——决战渐冻，相信相信的力量】在中国，谈起渐冻症，绕不开前京东副总裁蔡磊的名字。面对生命倒计时，他没有过多犹豫，决心向一两百年来仍无解的医学难题发起挑战：以互联网思维搭建起全球最大的渐冻症患者科研数据平台，推动药物研发以前所未有的速度向前。截至2025年底，蔡磊带领团队协作推进近300个药物管线和治疗路径，其中30余个项目已进入临床试验阶段。与此同时，越来越多的患者、科学家、药企被他的精神感染，加入这场“破冰”行动。渐冻症，也第一次从个体的不幸，转化为一场集体参与的公共议题。与渐冻症缠斗六年后，已失去说话和行动能力的蔡磊，通过眼控仪与 CGTN 一同回望这段破冰之旅。

This is a story about fighting against time, frozen bodies and more than 150 years of medical despair.

In China, public awareness of ALS has become closely associated with one name: Cai Lei, former vice president of JD.com. After his diagnosis, he chose not to wait but to act – building the world's largest patient-centered ALS research data platform and accelerating drug development at an unprecedented pace. What began as one man's response to illness has grown into a collective effort, drawing patients, scientists and drug developers into a shared attempt to break the ice of an incurable disease.

Six years into the battle, unable to speak or move, Cai reflects on this journey with CGTN through an eye-tracking device, showing how belief, when shared, can reshape hope. http://t.cn/AX45QjiM